HECI Medicine

HECI Medicine Inc

Our vision: A world without rare diseases in Africa

Who We Are

We are a non-profit organization committed to providing faster access to diagnosis and therapies to rare diseases patients in Africa. We aim to be at the forefront of bringing diagnosis and medicine to where it is needed most and to achieve these goals, we will use drug repository and repurposing programs. Provide research grants to researchers in universities and research institutions based in Africa who work on rare diseases with a goal of encouraging them to bolster research on rare diseases.

We adhere to high stand values in everything we do. We work hard to improve our communities because we believe the world is a better place to live in when everyone has equity access to health care treatments.

Our Mission

To eliminate rare diseases in Africa through the advancement of research to identify drugs that can be repurposed and provide dependable access to diagnosis tests and drugs to treat patients with rare diseases in this part of the world.

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Rare Disease Facts

Approximately 50 million people in Africa have a rare disease

There are more than 7,000 rare diseases or conditions worldwide

30% born with a rare disease will not live to see their 5th birthday

Approximately 50% of individual with rare diseases are children

1:10 individuals suffer from a rare disease

Rare diseases affect over 350 million patients globally

Genetic testing could help diagnose many rare diseases

85% of rare diseases are genetic

Only 5% of rare diseases have treatments

On average, a rare disease is misdiagnosed 2-3 times

Rare diseases in Africa, especially rural areas, are often neglected due to lack of resources

Sources include: International Federation of Pharmaceutical Manufacturers and Associations, National Institutes of Health, Rare-X, EveryLife Foundation for Rare Diseases, and Global Genes.

Target Population Served

Rare disease patients in Africa, especially in rural areas, are often neglected due to lack of resources. In Africa, diagnosis and treatment are also limited and underfunded, which means there are usually prolonged delays in patient care. We address the need for improved access to medical treatment of communities in the entire African who are affected by rare diseases. This will be accomplished by providing affordable testing kits and medicine to this population.

Together We Can Make a Difference

Won’t you join with us in caring for rare disease patients in Africa?